The Where now blog.

Dear Blog,   My local Social Services people have failed to do a new assessment of any of my current complex needs. I was trying to see whether I could renegotiate for a twice weekly hair wash with them alongside my washing needs for which currently I have to pay privately. They had said previously that they don't pay for hair washes as it's seen as a want not a need. I Don't agree with them on that, and nobody else I've spoken to agrees with them either. But this was asking for a new assessment to try and…continue reading →

Maybe this week and more!

Dear blog, On Monday afternoon my GP phoned. My test next week can go ahead despite that problem I mentioned on my previous blog, and he issued a prescription to the chemist for some cream which I have now received. Fingers crossed hey folks? After previously being cancelled I went to the dentist, had two X-rays done (don't know what for) no worries over gingivitis, so far so good. Maybe one day I will be able to afford braces to straighten my teeth, still I can dream. I now have very clean teeth. I saw the lovely…continue reading →

A good carer discovered my piles

Dear Blog, A female carer who gives me a good wash discovered I have piles! I am waiting for a test but whether I can have the test whilst with piles remains to be seen. I wonder what on earth this now means.  With Social Services, I've had another phone chat with them, but whether I will get the assessment I have asked for in the next couple of weeks remains very unclear. I am on a waiting list to be seen is all I currently know.  I had another call but I am rather…continue reading →

A proposed end of Social workers

This is my personal view: I propose ending Social Care assessments for adults aged 18 or over in their own homes and everyone would provide `Self Assessment`, the money saved should go into providing better services for adults. Also I want to axe `service charges` that clients at present are required to pay,  and to cover this a saving would clearly be made if the role of those commissioned to calculate service charges were axed. Reducing the number of managers who are clearly a massive drain on the public purse should be considered too.   I hear you…continue reading →

No News Is Good News – Certainly Not!

I feel very upset and exasperated with The Community Mental Health team in my area, nothing is really moving forward. I'm still, myself, looking into an electric wheelchair to use  both indoors and outdoors. I want my life back to go to the theatre or cinema, be happy a bit at least sometimes. I'm 35 years old and have no desire to just vegatate in my flat, although it's obvious certain people expect the client to be bedridden or just spend their live indoors to qualify for their so called help. I have some good people around me, if…continue reading →

A recent article about motability cars

I wanted to comment about an article I recently heard about, and then glanced at, in the Daily Express newspaper about Motability cars. What looked like friends, family or Carers using the Motability cars without the client or disabled person being in the car with them. Whoever is driving it, to my knowledge, the Motability car is not allowed to be driven without the client being in the car themselves. I've heard some people do this and, if caught, these people should at the very least be given a fixed penalty notice. I will say…continue reading →

A Monte Carlo Film Review

Monte Carlo is just a superb film, apparently based on a book. It was very plausible, while at the same time being very funny in parts and while not being too over the top, a hard balance to achieve sometimes I think. I went to see this particular film because it was starring an actor called Luke Bracey who previously played Trey Palmer in Home And Away. I did feel somehow now that the character Trey Palmer was hotter than Luke Bracey himself. I'd definitely give the film 8 and a half out of ten. The best scenes were…continue reading →

glimmers of hope

Dear blog,   A few small glimmers of hope have finally come.    At last I heard from the Urine continence nurse and at some point I'm trying out a new product, a new sort of pad. I will let you guess where it's for. I'm still fretting somewhat over a very personal test I need to have done. It's very personal indeed to me. I'm hoping myself, my next of kin, and my Barbie doll can somehow survive though it. It involves a small taste of my life for the future, maybe, enemas or suppositories (Yuck, I heard from…continue reading →

life heading towards a `no man’s land`

Dear Blog,   I wish I knew where my life is heading. Some may say now into a no man's land. Within the last 7 days I had a joint visit from a Physio and a Occupational Therapist. Although it could have gone worse I only felt a little better afterwards, but I suppose it is, at least, something that actually occurred I guess. I was asked about the physio exercises, to which I replied I still wasn't able to do them on my own while still battling all my other complex medical conditions, especially my ongoing severe mental health problems which…continue reading →

I ventured outside yesterday……..

I ventured outside yesterday afternoon and, more or less, within 6 mins. of going out, my legs started to give out on me, and my walking frame felt just like dragging a very large bag of spuds across the floor. I bumped into a close female friend en-route who put me straight into a taxi home, luckily before the 4th fall I would've had this year. I broke down in tears, just sobbing uncontrollably, feeling so trapped in my own home although I love my joint. I recently got a 2nd hand mobility scooter, but there is no…continue reading →