Hello there everyone, my name is Lydia Livingston, I’m in my mid-forties and I’m originally from Manchester. As you can probably tell from the above photographs I’m a little different and extrovert from what you may consider a normal person. My main types of medical conditions are: An Autism Spectrum type disorder; Complex Post Traumatic Stress Disorder; Secondary Progressive Multiple Sclerosis. Most specialists cannot understand or interpret me very well, for example the people in the mental health team simply see me as a Cruella De Vil type character. By doing so they can easily avoid treating people like me to save on their budgets and responsibilities. I’ve got 3 main medical conditions of very different things, with different specialities being involved with a resulting lack of clear transparency, Many reports and letters are not read by doctors as there’s too many of them simply to read. This is a small snapshot of my life in this 1, possibly too large, paragraph
A) 5 news UK.
B) Favourite TV is The Tonight Programme, Martin Lewis Money Show, and most afternoon Ch5 movies.
C) Current and consumer affairs.
D) Favourite reporters are Catherine Jones & Simon Vigar, With best Newsreader Claudia-Liza Armah, and lurking behind the scenes now with her awesome accent is Specialist News Producer Katie Goodman.
E) Best pop groups is formerly Big Fun and The Pet Shop Boys, favourite singers now are Sonia Evans, Rebecca Black, Sandie Shaw, Lolly (Anna Kumble), Geri Horner and the late Tammy Wynette.
F) Using twitter and google, maybe some kinds of new gadgets too.
Lydia’s recent wellbeing.
Just recently, after my Secondary Progressive MS had unfortunately got a lot worse, a physio stated they feared that even with a standing aid, that my standing was not good enough to walk again. I use my hands to weight bear through the rotastand, and even if I could walk again it would only be very short term she stated. 1 doctor once said my MS would, in time, leave me bed-bound, but I refuse to simply give up, and I will try to help other people with MS by making specialists learn from me what can be achieved. I’m donating my brain to MS research, I hope this will also help, in particular medical students embarking on their future careers.
Many thanks for reading this