Lydia’s Lifestyle.

Hello there everyone, my name is Lydia Livingston, I’m in my late-forties and I’m originally from Greater Manchester.  My main types of medical conditions comprising of: Complex Post Traumatic Stress Disorder; An Autism Spectrum type disorder; Secondary Progressive Multiple Sclerosis. Most specialists cannot understand or interpret me very well,  for example the people in the mental health team simply see me as a Cruella De Vil type character. By doing so they can easily avoid treating people like me to save money on their budgets and responsibilities. I’ve got 3 main medical conditions of very different things, with different specialities being involved with a resulting a lack of clear transparency, Many reports and letters are not read by doctors as there’s too many of them put simply to read. This is a small snapshot of my life in this 1, possibly too large, paragraph.

Lydia’s interests.

A) 5 news UK.
B) My favourite TV is most afternoon Ch5 thriller type movies. Favourite Radio stations are Hot Radio and Magic Radio.
C) Current and consumer affairs.
D) Favourite reporters are Catherine Jones & Simon Vigar, With best Newsreaders Tessa Chapman, Natalia Jorquera & Anila Dhami, and lurking behind the scenes now with her awesome accent is Specialist News Producer Katie Goodman.
E) Favourite singers now are Lolly (Anna Kumble), Sonia Evans, Sandie Shaw, Geri Horner, Wayne Fontana and the Mindbenders and the late Tammy Wynette.
F) Using twitter and google + You Tube too, maybe some kinds of trendy new gadgets too.

Lydia’s recent wellbeing.

was first diagnosed with Multiple Sclerosis in 2004 then later Secondary Progressive MS in 2006. I’m at the stage now where I can only roll over in bed with the assistance of bed levers and carers, I now need full assistance with personal care, and I’m wheelchair restricted which makes me feel tearful at times. I always hope that my website helps people like me to be better understood in society, some people see my wheelchair first and the person second which is very sad. Sadly there is unlikely to be an overall cure for MS in my lifetime. I’m on a dose of Simvastatin which in some people has been seen to slow down the progress of this auto-immune disease a bit. I’m donating my brain to MS research, I hope this will also help, in particular medical students embarking on their future careers. A recent Social Services OT assessment has suggested a Profile bed (raises and lowers head and/or legs) but I am not keen on using these types of bed so I’m looking at other options to help my sleep.

Many thanks for reading this, it’s much appreciated.